Dear PPMD Community,
For more than thirty years, I have had the honor of standing beside you—parents, families, clinicians, researchers, and advocates—united in a single purpose: to end Duchenne and Becker muscular dystrophy, and to ensure that every child and adult in our community has access to the very best care and therapies.
Today, I’m excited to share a new chapter in PPMD’s journey—one focused on strategically advancing progress by building on our strong foundation. As our world grows more complex and the pace of discovery quickens, we must meet these challenges with even greater strength and expertise, guided by data-driven science, hope and the power of us. That’s why I am delighted to announce the expansion of PPMD’s leadership team with the addition of Katherine Beaverson, MS, as our new Chief Executive Officer.
Katherine joins us with over fifteen years of experience in Duchenne and rare disease, beginning her career as a genetic counselor working directly with families. She brings a deep respect for clinical science, a heartfelt commitment to our mission, and a remarkable ability to connect across the research, care, and advocacy spaces. Katherine has spent her career forging partnerships and building bridges—skills that will help us accelerate progress, bring new therapies to families faster, and ensure that our network of care continues to grow stronger and more connected.
I want to be clear: our mission is unwavering. PPMD was founded by families, for families, and that will never change. Our commitment to advocating fiercely, collaborating widely, and putting people living with Duchenne and Becker at the center of everything we do remains at the heart of our work. With Katherine’s additional leadership, we are better equipped to navigate this complex landscape, to push for access to promising therapies, and to make sure that every family has options and feels supported along their journey.
As President, I will continue to work alongside Katherine, our incredible staff, and all of you. Together, we will keep moving forward—faster and stronger—toward the day when every person with Duchenne and Becker muscular dystrophy can live a long and healthy life.
Thank you for being part of this community, for your trust, and for inspiring us every day. We are, as always, on this journey together.
With hope and determination,
Pat Furlong
President, Parent Project Muscular Dystrophy
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