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I’m taking steps that will lead me away from caregiver burnout
I wrote last week that I have been overwhelmed this summer by the demands of being a mom and caregiver. I have seven children with my husband, Jason: Lexi, 25; Max, 20; Chance, 19; Rowen, 17; Charlie, 15; Mary, 11; and Callie, 4. Max, Rowen, and Charlie live with Duchenne muscular dystrophy (DMD). Caring for…
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Highlights from PPMD’s 2026 Annual Conference
Whether you joined us in Orlando or are catching up from home, the learning opportunities from PPMD’s 2026 Annual Conference continue. We’re excited to share that recordings and resources from PPMD’s 2026 Annual Conference are now available! From the latest updates in Duchenne and Becker research to practical care conversations, educational sessions, and inspiring community…








