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CureDuchenne’s annual conference to highlight research, family support
CureDuchenne will host its annual Futures National Conference, a four-day event focused on bringing education,
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The Why Behind MDA’s Campaign to Support Family Caregivers
Carlee Weber and Nicole Lucas This month, the Muscular Dystrophy Association (MDA) is launching an
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Catch up on PPMD Together: Philadelphia
This past weekend, PPMD kicked off our 2026 PPMD Together series in Philadelphia, Pennsylvania. Individuals
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With my mobility severely limited, I’m in dire need of a wheelchair
One problem dealing with a progressive disease like facioscapulohumeral muscular dystrophy (FSHD) is that there’s
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Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families
Emerging guidance offers cautious optimism—here’s what parents and caregivers should know For years, families affected by
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Building routines that support Duchenne care
Shalom Lim, who lives in Eastern Singapore, was diagnosed with Duchenne muscular dystrophy at 4
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Setting expectations for treatment adherence in Duchenne care
Edward Smith, MD, a neurologist, explains why setting clear expectations around treatment benefits and risks
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Simply Stated: Introduction to CIAO1-Related Neuromuscular Disorder
CIAO1-related neuromuscular disorder is an inherited condition that was first reported on in late 2023.
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EU panel recommends expanded use of DMD treatment Agamree
The Committee for Medicinal Products for Human Use (CHMP) has recommended that approval of Agamree
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Advancing Duchenne Newborn Screening: A Collaborative Path Forward
On April 24, 2026, PPMD, in collaboration with the Muscular Dystrophy Association (MDA) and the
