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Navigating disability benefits for muscular dystrophy
When the progressive muscle weakness of muscular dystrophy (MD) begins to interfere with your employment,
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To me, a wheelchair is a symbol of improved function, not disability
Everyone recognizes the blue and white signs featuring a figure in a wheelchair that adorn
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Beyond Approval: Why Drug Development Doesn’t End at FDA Sign-Off
For many neuromuscular community members — and clinicians — who are waiting for a new
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When school is out, my sons with DMD get into their summer groove
This past winter in rural Nebraska was mild, with no real snow and only a
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How MDA Summer Camp Influenced the Direction of My Life
Bio: Rebecca Hume is a Senior Specialist Writer for Quest Media. She graduated from Slippery
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Upsher-Smith launches new DMD support websites for Kymbee treatment
Upsher-Smith Laboratories has launched two new websites to support people with Duchenne muscular dystrophy (DMD)
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Clinical Research Alert: Clinical Study for Adults with Late-Onset Pompe Disease (LOPD)
Researchers at Shionogi Inc. are conducting a phase 2 clinical trial for adults with late-onset
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Exploring other mobility devices when a walker is no longer sufficient
Last week was a busy one for me. In addition to my normal activities, I
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Collaboration aims to improve design of FSHD clinical trials
A new collaboration aims to improve the design of clinical trials testing potential treatments for
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Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’
“Don’t hope for a miracle. Make one,” is the powerful tag line from “Extraordinary Measures,”
