Free nationwide events deliver expert guidance and meaningful connections for families impacted by Duchenne and Becker muscular dystrophy
NEWPORT BEACH, Calif., February 4, 2025 – CureDuchenne, a global leader in advancing research and improving patient care for individuals with Duchenne and Becker muscular dystrophy, today announced the 2026 lineup of CureDuchenne CARES events, designed to deliver the latest treatment insights, practical resources, and meaningful community connections.
Throughout 2026, CureDuchenne will host free, full-day workshops and evening dinner sessions across the country. Families from across the country and around the world will also come together in Orlando, FL, in May for the organization’s annual FUTURES National Conference.
CARES Family Workshops
At each CARES workshop, attendees will hear from leading clinicians, local healthcare providers, and CureDuchenne experts who will share best practices in multidisciplinary care and physical therapy techniques to help preserve mobility. Sessions will also feature updates on emerging treatments, ongoing clinical trials, and practical discussions often not covered in traditional clinic visits. Each event includes an interactive “Open House” that connects families with local support services as well as pharmaceutical companies available to answer questions about treatment options. Breakfast and lunch are provided, translation services are provided, and lodging assistance is available for qualifying attendees.
CARES Dinner Sessions
The CARES dinner sessions provide a welcoming, small-group environment focused on caregiver mental health, self-care, and connection. These intimate gatherings create space for honest conversations, shared experiences, and meaningful support within the Duchenne and Becker community.
2026 FUTURES National Conference
Building on this momentum, the 2026 FUTURES National Conference invites families, caregivers, and professionals to come together on May 21–24, 2026, at the JW Marriott Orlando, Grande Lakes. The event will feature sessions on navigating different stages of the disease, treatments and scientific advancements, mental health, multidisciplinary care, career and life skills, caregiver and sibling support, and more. The event will also feature a dedicated track in Spanish as well as multilingual translation services for all sessions. Participants will also enjoy family-friendly activities, including an unforgettable swim with dolphins experience an all-inclusive, fun-filled day at Discovery Cove.
Debra Miller, founder and CEO of CureDuchenne, highlights the ongoing need for family support as the community continues to navigate advances in research and care. “Our events are about more than sharing information—it’s about strengthening the bonds within our community,” said Debra Miller, founder and CEO of CureDuchenne. “By bringing families, clinicians, and experts together, we create spaces where knowledge inspires confidence and connection fuels hope.”
CureDuchenne 2026 Events
● Saturday, February 7, 2026 – Atlanta, GA (Dinner Session)
● Saturday, February 21, 2026 – Dallas, TX (Workshop)
● Saturday, March 21, 2026 – Austin, TX (Dinner Session)
● Saturday, March 28, 2026 – Baltimore, MD (Workshop)
● Saturday, April 11, 2026 – Pittsburgh, PA (Dinner Session)
● Saturday, April 25, 2026 – Charleston, SC (Dinner Session)
● Thursday, May 21-Sunday, May 24, 2026 – FUTURES Annual Conference, Orlando, FL
● Saturday, August 8, 2026 – Denver, CO (Dinner Session)
● Saturday, August 15, 2026 – Seattle, WA (Workshop)
● Saturday, September 5, 2026 – New York/New Jersey (Dinner Session)
● Saturday, September 26, 2026 – San Diego, CA (Workshop)
● Saturday, October 3, 2026 – Syracuse/Albany, NY (Dinner Session)
● Saturday, October 17, 2026 – Indianapolis, IN (Workshop)
● Saturday, November 7, 2026 – Los Angeles, CA (Dinner Session)
● Saturday, November 14, 2026 – Sacramento, CA (Workshop)
● Saturday, December 5, 2026 – Albuquerque, NM (Workshop)
● Saturday, December 12, 2026 – Orange County, CA (Dinner Session)
To register or find more information about upcoming CureDuchenne CARES events, visit www.cureduchenne.org/events/category/community-events.
About CureDuchenne
Over twenty years ago, CureDuchenne was created with one goal: to find and fund a cure for Duchenne muscular dystrophy, one of the most common and severe forms of muscular dystrophy. Today, CureDuchenne is recognized as a global leader in research, patient care, and innovation for improving and extending the lives of those with Duchenne. CureDuchenne’s innovative venture philanthropy model has advanced transformative treatments for Duchenne muscular dystrophy, including 19 projects that advanced to human clinical trials and multiple projects to overcome the limitations of exon-skipping and gene therapy. In addition, CureDuchenne contributed early funding to the first FDA-approved Duchenne drug, pioneered the first and only Duchenne physical and occupational therapist certification program, and created an innovative data-integrated biobank, accelerating research toward a cure. For more information on how to help raise awareness and funds needed for research, please visit cureduchenne.org or follow us on Facebook, Instagram, LinkedIn, and X.
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