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The life with Duchenne muscular dystrophy no one said I could live
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Duchenne on the World Stage: World Duchenne Awareness Day at the United Nations
On Friday, September 5th, 2025 I had the honor of speaking at the United Nations […]
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Community Voices: Disability Is Not a Disappearing Act
Chase the Entertainer “My name is Chase the Entertainer. I’m a mentally ill, physically disabled, […]
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My son’s pneumonia reminds me I still don’t know what I don’t know
I expected today, as this column is published, to be long and exhausting. I’d been […]
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Avidity reports multiple functional improvements with Del-zota for individuals with Duchenne amenable to skipping exon 44
As an early investor in Avidity Biosciences, we are pleased to share their exciting news […]
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Long-term Duvyzat helps maintain motor skills in Duchenne MD
Long-term treatment with Duvyzat (givinostat) delays the loss of key motor skills in people with […]
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3 scientists honored for laying groundwork for DMD treatments
Note: This story was updated Sept. 10, 2025, to correct the secondary headline from Columbia […]
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Young adults with disabilities deserve housing to live with dignity
On Aug. 21, I wrote to my local newspaper here in Singapore about a gap […]
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Looking for solutions helps me overcome obstacles with Duchenne
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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MDA Ambassador Guest Blog: Life Lessons from My Service Dog (and Best Friend)
Lyza Weisman (23) was diagnosed at 13 months old with spinal muscular atrophy (SMA). She was raised […]
