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Exercise in Dystrophinopathy: What Families Need to Know
PPMD recently hosted a webinar centered on common questions from families: is exercise recommended in
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This simple strength test could predict how long you live
Staying strong may be one of the biggest secrets to living longer — especially for
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‘Heart-on-a-chip’ project to help researchers study BMD, DMD
Duchenne Parent Project Spain is investing €247,000 (just over $290,000 USD) in a project that
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What MDA Summer Camp taught me about why we show up
This article was provided by our partner, the Muscular Dystrophy Association. It has been reviewed by
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Remembering a dear friend, who taught me about leaving a legacy
My dear friend Colin Rensch had a saying: “If you think you can, then of
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Guest Voice: After diagnosis, focusing on what we can do
It started long before I had the words to explain it. At 9 years old,
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In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this
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Talking with my daughter about her journey with DMD carrier status
I have been writing here about my family since August 2021. My husband, Jason, and
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When “No Options” Starts to Change: A New Chapter for Seronegative Myasthenia Gravis
For many people living with generalized myasthenia gravis (gMG), the journey is not just defined
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Entrada Therapeutics announced positive initial data from their Phase 1/2 ELEVATE-44-201 study in DMD patients amenable to skipping exon 44.
Entrada Therapeutics, who received early funding from CureDuchenne to advance their Endosomal Escape Vehicle Platform,
