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Collaboration aims to improve design of FSHD clinical trials
A new collaboration aims to improve the design of clinical trials testing potential treatments for
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Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’
“Don’t hope for a miracle. Make one,” is the powerful tag line from “Extraordinary Measures,”
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MDA Ambassador Guest Blog: My Pompe Journey
Kathryn Arvidson champions accessible mental health treatment for people with disabilities. Kathryn was diagnosed as
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I won’t apologize for having 3 children with Duchenne MD
I have always been an open book about my life. I am a writer, caregiver,
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FDA clears trial testing Mesoblast cell therapy in kids with DMD
The U.S. Food and Drug Administration (FDA) has given Mesoblast the go-ahead to launch a
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Quest Podcast: From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability
In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel
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In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this
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Seeing ‘Les Misérables’ reminds me of the arc of my own life with DMD
Last Saturday, I attended “Les Misérables: The Arena Spectacular” with my girlfriend at Marina Bay
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‘Be Their Muscle’ MDA campaign marks 10 years of workouts, fundraising
The Muscular Dystrophy Association (MDA) and Burn Boot Camp, partnering once again for the 10th annual Be
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Ambassador Guest Blog: How I Use My Voice by Volunteering – and Why You Should Too
K.L. Cleeton is an entrepreneur, writer, and advocate living with Spinal Muscular Atrophy in rural
