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A Look Back at the Quest Summer Product Guide of 2026
The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. Find something for yourself, or…
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Scientists reveal why some workout recovery tricks can backfire
Ice baths, massages, compression garments, and recovery supplements promise faster muscle recovery, but research suggests their benefits are often overstated, and some techniques may even undermine long-term gains. Scientists say the most effective recovery methods are far simpler and cheaper: getting enough sleep, eating well, and giving muscles time to rebuild.
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Relentless FSHD progression is making it hard for me to find solid ground
Four years ago, my family enjoyed a week’s vacation at Bethany Beach, Delaware. There were many great moments that made this trip with my children and grandchildren memorable. There were also a couple of misadventures. We spent a day on Virginia’s Chincoteague Island, which is famous for its population of wild ponies. The beach was…
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Entrada Therapeutics Shares Updates on Its Exon 45 and Exon 44 Skipping Programs in Duchenne
Exon 45 and Exon 44 Skipping Program Updates As an early investor in Entrada Therapeutics, we are pleased to share updates on their Exon 45 and Exon 44 skipping programs in Duchenne. Exon 45: ENTR-601-45, an experimental therapeutic designed to skip exon 45, was safe at the initial dose of 5 mg/kg given once every…
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31st World Muscle Society Congress: Duchenne and Becker Muscular Dystrophy Highlights
Duchenne muscular dystrophy research update Members of the CureDuchenne team recently attended the 31st World Muscle Society (WMS) Congress, where we spent a productive week connecting with researchers, clinicians, pharmaceutical companies, and patient advocacy organizations from around the world. Meetings and presentations throughout the conference provided valuable insights into the latest scientific advances and emerging treatments for…
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Approved Duchenne gene therapy may be safe for boys as young as 2
The gene therapy Elevidys (delandistrogene moxeparvovec-rokl), approved in the U.S. to treat people ages 4 and older with Duchenne muscular dystrophy (DMD), can be safely administered to boys with DMD as young as 2 years old, new data show. A new analysis, which covered nine boys with DMD given the gene therapy at age 2,…
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Only one workout helped older adults lose fat and keep muscle
A six-month study suggests that high-intensity interval training (HIIT) may offer older adults a powerful advantage: losing body fat while keeping their muscle. Unlike moderate-intensity workouts, which led to a small loss of lean muscle, HIIT preserved it while also improving body composition around the waist.
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Fixing accessibility issues at a choir concert so the show can go on
It seems to be a theme in our lives: Lifts and elevators work great — until they don’t. I am a mom to many: Lexi, 25; Max, 20; Chance, 19; Rowen, 17; Charlie, 15; Mary, 12; and Callie, 4. Three of my sons, Max, Rowen, and Charlie, have Duchenne muscular dystrophy (DMD), and all three…
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Experimental treatment may preserve upper limb function in DMD
Boys and young men with Duchenne muscular dystrophy (DMD) who switched from a placebo to the experimental cell therapy deramiocel as part of a clinical trial showed smaller declines in measures of upper limb function after making the change, new data show. Data from the study, which included nearly 100 patients followed for two years,…
