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New Cardiac Insights Show How Neuromuscular Diseases Affect the Heart
Neuromuscular diseases can impact muscles throughout the body, including the heart. Because heart health is
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Foster Care, Adoption, and Surrogacy Considerations for Parents with Neuromuscular Diseases
For many people living with neuromuscular diseases — or any disability — the desire to
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Finding the Funny: Fiona Cauley Uses Comedy to Raise Disability Awareness
Fiona Cauley, 29, brings attention to Friedreich ataxia (FRDA or FA) every time she sits
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MDA’s DME Grant Program Helps Get Essential Equipment to Live Well
Access to durable medical equipment (DME) is vital for safety, mobility, and greater independence. For
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Considerations and Tips to Plan for Pregnancy with a Neuromuscular Disease
Like many expectant moms, Savannah Jordan of California experienced a mix of excitement, nerves, and
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Progress Now: Drug Approvals and Clinical Trial Updates
Amyotrophic lateral sclerosis (ALS) Phase 3 Clinical Trial: Enrolling PREVAiLS is a phase 3 trial
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Second-Act Career: Sharon Townsend Finds Purpose in a New Role
Sharon Townsend spent the first chapter of her adult life focused on creating a loving,
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Understanding ADSS1 or ADSSL1 Myopathy
ADSS1 myopathy (formerly known as ADSSL1 myopathy) is a very rare, genetic neuromuscular disease that
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Accessible Dental Care: Why You Should Go to the Dentist and How to Prepare for a Visit
Michael Chan, DDS A trip to the dentist can feel overwhelming for many people living
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Looking for community? Join us in the muscular dystrophy forums.
Having a rare disease is not an easy life. I have limb-girdle muscular dystrophy, so
