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How to combat social isolation while growing older with muscular dystrophy
As I grow older with limb-girdle muscular dystrophy, one of my biggest challenges isn’t medical;
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5 ways your DMD care team can make treatment access easier
Getting Duchenne muscular dystrophy (DMD) treatments covered shouldn’t feel like a second job, but it
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Making time for self-care is vital in DMD caregiving
I live in rural Nebraska with my husband, Jason, and seven children. Three of them
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MDA Ambassador Guest Blog: Rurally Complicated
Jenna Ryerson is a 26-year-old, Missouri-based writer and creative person with a passion for exploring
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Agamree could reverse growth stunting in boys with Duchenne
Boys with Duchenne muscular dystrophy (DMD) may be able to regain lost height and overcome
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Ataluren Update for the Duchenne Community
PTC Therapeutics provided an update to the Duchenne community with additional details following the withdrawal
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PTC Therapeutics Shares Updated Community Letter Regarding Ataluren
Today PTC Therapeutics released an updated letter to the Duchenne community on their website with
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Napa in Newport Raises $1.6 Million to Accelerate Research for Duchenne Muscular Dystrophy
Renowned Napa Valley Vintners and Philanthropists Unite in Newport Beach for a Weekend of Wine, Food,
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Bridgebio asks FDA to approve potential 1st treatment for LGMD2i
Bridgebio Pharma has submitted an application asking the U.S. Food and Drug Administration (FDA) to
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Simply Stated: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare neurological disorder in which the immune system
