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Vamorolone up for approval in Canada as treatment for DMD
Health Canada has agreed to review an application by Kye Pharmaceuticals seeking the approval of […]
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Watch: Wave Life Sciences – Update on FORWARD-53 Study of WVE-N531 (Webinar Recording)
Wave Life Sciences recently joined PPMD for a community webinar to provide an update on […]
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A Singaporean theater production reveals caregiving complexity
I recently had the opportunity to attend a Singaporean theater production titled “Supervision,” thanks to […]
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MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time
Dwayne Wilson is 57 years old. He is originally from Southern California and lived in […]
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Independent committee favors continuing Elevidys dosing in trials
An independent data monitoring committee (DMC) favors continuing dosing Elevidys (delandistrogene moxeparvovec-rokl) to people with […]
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
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Wake up to the achievements of the disability rights movement
This August will mark 40 years since I was diagnosed with what we eventually discovered […]
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The Future of Newborn Screening for Duchenne: Moving Forward After the ACHDNC’s Dissolution
Yesterday, we received news that the Advisory Committee on Heritable Disorders in Newborns and Children […]
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Living with Duchenne muscular dystrophy feels like a gamble
I don’t gamble. I don’t know how to do it. I wouldn’t even know how […]
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Potential DMD treatment KER-065 shows safety in Phase 1 study
KER-065, a potential treatment for Duchenne muscular dystrophy (DMD) and other neuromuscular diseases, showed a […]
