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In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while…

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Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

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Last Saturday, I attended “Les Misérables: The Arena Spectacular” with my girlfriend at Marina Bay Sands in Singapore. This landmark resort includes a luxury hotel, a shopping complex, and a performing arts theater that hosts international productions. A musical based on the novel by Victor Hugo, “Les Misérables“ is about second chances, justice, love, and…

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The Muscular Dystrophy Association (MDA) and Burn Boot Camp, partnering once again for the 10th annual Be Their Muscle campaign, are calling on everyone across the U.S. to join a workout and help raise awareness and funding to support the neuromuscular disease community. Throughout April, more than 400 Burn Boot Camp locations in 44 states will unite…

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K.L. Cleeton is an entrepreneur, writer, and advocate living with Spinal Muscular Atrophy in rural Illinois. He writes about disability, identity, and the systems that shape how we live at KLCleeton.com. This February, I’ve been spending my Tuesday and Thursday evenings on a video conference with a group of young entrepreneurs and creatives through the…

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As I grow older with limb-girdle muscular dystrophy, one of my biggest challenges isn’t medical; it’s social isolation. When I was younger, it was easier to say yes to all kinds of social activities. That is likely true for all of us, but with a power wheelchair, progressive muscle weakness, and general fatigue, I decline…

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Getting Duchenne muscular dystrophy (DMD) treatments covered shouldn’t feel like a second job, but it often does. Between insurance denials, endless paperwork, and high medication costs, treatment barriers can pile up fast, making DMD treatment access more difficult. Your DMD care team does a lot behind the scenes and can help you navigate insurance and…

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I live in rural Nebraska with my husband, Jason, and seven children. Three of them — Max, 20, Rowen, 17, and Charlie, 15 — live with Duchenne muscular dystrophy (DMD), so I am a mom to many as well as a caregiver. At times, it feels like I’m giving everything I have to my family.…

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Jenna Ryerson is a 26-year-old, Missouri-based writer and creative person with a passion for exploring both the practical and the mystical sides of life. With Midwest roots and a naturally curious spirit, she blends grounded insight with intuitive reflection. Her interests range from holistic wellness and natural remedies to symbolism, astrology, and personal growth. Jenna…

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Boys with Duchenne muscular dystrophy (DMD) may be able to regain lost height and overcome growth stunting by switching from traditional steroids to the newer medication Agamree (vamorolone), a new study suggests. While standard corticosteroids are essential for managing DMD-related inflammation, they are known to halt bone growth in children. According to researchers, these new data…

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