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The week we ran out of our emotional ‘leftovers’
When I was a young mom watching my oldest daughter, Lexi, move from upper elementary
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The Hidden Power of Self-Care in Caregiving
Caregivers often give so much of themselves that sometimes their own needs fade into the
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Meet Our 2025 MDA Quest Photo Contest Winners
Power play Congratulations to our 2025 Quest Media photo contest winner, Paula Saxton, of Doylestown,
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FDA Approves New Safety Warning and Revised Indication for ELEVIDYS
Today the FDA announced a significant update to the labeling and indication of ELEVIDYS for
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Protected: PPMD Continues to Drive Progress with Your Support
This content is password protected. To view it please enter your password below: Password: The
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Long-term Agamree data show better growth, lower fracture risk
Agamree (vamorolone), a type of corticosteroid approved to help preserve muscle function in people with
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MDA Ambassador Guest Blog: How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT
Kevin Crowley is a 48-year-old father of two, husband to the most beautiful woman in
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Dancing to the beat and singing to the melody to find a cure for FSHD
I’m a member of the Western Pennsylvania chapter of the FSHD Society, which serves as
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Clinical Research Opportunity: Phase 3 Study of Cladribine in People with Generalized Myasthenia Gravis (gMG)
Researchers at EMD Serono Research & Development Institute, Inc. are working to better understand generalized myasthenia
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My Journey to Gratitude is Paved with Acceptance and Advocacy
I’m John Krepps and I am living with Charcot Marie Tooth disease, also known as
