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Edgewise Therapeutics Announces Positive Two-Year Topline Results from ARCH Study of EDG-5506
Edgewise Therapeutics, Inc., has announced positive two-year topline results from the ARCH open label study […]
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Here’s How You Can Drive with a Disability
If you have a desire to drive with Duchenne muscular dystrophy or be a passenger […]
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EDGEWISE THERAPEUTICS ANNOUNCES POSITIVE TWO-YEAR TOPLINE RESULTS
Edgewise Therapeutics Announces Positive Two-Year Topline Results from the ARCH Open Label Trial of Sevasemten […]
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PPMD Launches First State-Specific Duchenne Advocacy Day in Illinois
PPMD is proud to announce the launch of our first state-specific Duchenne Advocacy Day in […]
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Duchenne Siblings Study Published: Assessing Early Diagnosis from the Perspective of Parents with Multiple Children Diagnosed with Duchenne
For more than a decade, PPMD has been at the forefront of advocating for Duchenne […]
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Diagnostic testing IDs 2 gene mutations causing LGMD type R1
Diagnostic testing of individuals in India suspected of having limb-girdle muscular dystrophy (LGMD) revealed two […]
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A Decade of Distinction: Napa in Newport Celebrates 10 Years of Wine, Culinary Excellence, and Philanthropy
Southern California’s Premier Wine Event Brings Together Acclaimed Napa Valley Vintners Under One Roof to […]
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I’m feeling all the emotions as my oldest son reaches a big milestone
I have three sons with Duchenne muscular dystrophy (DMD): Max, 18, Rowen, 15, and Charlie, […]
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Fracture Management for Duchenne Muscular Dystrophy: Be Prepared with R.A.R.E
Dealing with a fracture is a frightening experience for anyone, especially someone living with Duchenne […]
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A recent fall has me wondering: Should I use a walker?
I had an incident about a month ago that I’ve been thinking about ever since. […]
