-
Building More Than Slides: MDA Engage Events Cultivate Connection
Dr. Kaitlin Batley, Engage Steering Committee member, MDA Care Center Director, Assistant Professor at UT […]
-
The importance of community for those of us living with MD
Living with muscular dystrophy for 40 years has taught me many things. I’ve written here […]
-
Fashion with Impact: CureDuchenne’s Ladies Luncheon Newport Beach Returns October 14 with Elegant Max Mara Showcase
Luncheon and Fashion Presentation, Produced and Sponsored by South Coast Plaza, Funds Transformative Duchenne Muscular […]
-
Scientists map genetic mutations linked to collagen 6-related MD
Researchers have developed a detailed molecular model for the structure of type VI collagen and […]
-
CureDuchenne’s “Champions in Dallas” Returns with Unforgettable Night of Food, Wine, and Hope for a Cure
Top Dallas Chefs and Napa Valley Wines Unite to Support Groundbreaking Research for Duchenne Muscular […]
-
Pride and heartbreak as my healthiest son is moving to college
August here in Nebraska is sweltering. Not only do the temperatures reach the high 90s, […]
-
Life with Lily: The Right to Access My Education Fully
“Lily, I think you’re old enough now to advocate for yourself in your 504 meeting […]
-
I’m waving goodbye to acting, but I’m not about to exit the stage
When I was 13 and fresh from spinal fusion surgery, I sat in a West […]
-
Edgewise Therapeutics: Focused on Muscle Disease
Developing a novel therapeutic designed to protect muscle in Becker and Duchenne muscular dystrophy Watch […]
-
Your Legacy Can Help Cure Duchenne
Legacy Giving August is Make-a-Will Month — the perfect time to reflect on how you […]
