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MDA Ambassador Guest Blog: Pursuing My Dreams While Living with a Rare Disease
Gabrielle Runyon is a graduate student in the Master’s Counseling Program at the illustrious Tennessee
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My emotions blurred as I watched my play from ‘The Other Side’
In my previous column, I shared my experience of stepping away from performing in my
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MDA-led project to map how human muscles repair themselves
A research collaboration led by the Muscular Dystrophy Association (MDA) aims to create a molecular
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Conoce a Rosalia Sandoval Garcia
Rosalia es una orgullosa mamá de Joe (8), quien vive con Duchenne, y de Sophia
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My willingness to educate others about MD benefits all of us
After my muscular dystrophy diagnosis in August 1985, I thought I could hide my symptoms
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Simply Stated: Understanding Myotonia Congenita
Myotonia congenita (MC) is a rare, inherited neuromuscular condition characterized by muscle stiffness (myotonia) present
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The unbearable weight of grief that smoothes the jagged edges
I type my columns on Tuesdays, but I write them in my head in the
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New analysis tracks Elevidys outcomes 3 years after treatment
Three years after receiving the gene therapy Elevidys (delandistrogene moxeparvovec-rokl) in a clinical trial, boys
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I define my story, even when Duchenne rewrites the script
I’ve often written about learning to live alongside uncertainty. Duchenne muscular dystrophy has a way
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Still playing my tune with a little help from my friends
In my previous column, I shared my concern about losing more strength due to the
