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Gear Up and Give Back with Violent Gentlemen Hockey Club
Limited-Edition Violent Gentlemen Hockey Club Tees Benefiting the CureDuchenne. Your purchase makes a difference.Every tee […]
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Simply Stated: Updates in Charcot-Marie-Tooth Disease (CMT)
Charcot-Marie-Tooth disease (CMT) encompasses a group of inherited disorders that affect movement and sensation in […]
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Clinical Research Alert: Observational Study on Parent and Caregiver Perspectives on Adherence to DMD Care
Researchers at Albany Medical College are seeking parents and caregivers of children with Duchenne muscular dystrophy […]
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Focusing on ‘strength’ this Muscular Dystrophy Awareness Month
Across the U.S., the neuromuscular disease community is preparing to mark Muscular Dystrophy Awareness Month […]
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Clinical Research Alert: Natural History Study of Individuals with Non-Dystrophic Myotonias
Researchers at the Center for Health + Technology at the University of Rochester are seeking individuals […]
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Certain proteins may be biomarkers of BMD progression, study suggests
Levels of certain proteins implicated in immune response and the body’s process to stop bleeding […]
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Newly Published Consensus Guidelines Aim to Ensure Safe and Equitable Delivery of Gene Therapy in Duchenne
PPMD, in collaboration with the Muscular Dystrophy Association (MDA), is proud to share the release […]
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Going it alone has gotten harder as my FSHD progresses
I’ve been on my own for the past 10 days while my wife, Wendy, and […]
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National Read a Book Day: Spotlight on Community Authors
While every day is a good day to enjoy the simple pleasure of reading, National […]
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ITF Therapeutics shares publication of long-term data showing givinostat can delay loss of functional abilities in Duchenne
Results published in the Annals of Clinical and Translational Neurology show that long-term treatment with givinostat, a […]
