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My Journey to Gratitude is Paved with Acceptance and Advocacy
I’m John Krepps and I am living with Charcot Marie Tooth disease, also known as […]
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Clinical Research Alert: Phase 1 Study of AMX0114 in Adults with ALS
Researchers at Amylyx Pharmaceuticals, Inc. are seeking adults with amyotrophic lateral sclerosis (ALS) to participate in […]
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Physical Therapy Can Make All the Difference in Duchenne
Record-Breaking Impact During World Duchenne Awareness Month Each September, World Duchenne Awareness Month shines a […]
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How the disability community benefits from having more choices
When in the course of human events, it becomes necessary to make choices, we must […]
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Tips for Smooth Holiday Travel
The holidays are a special time to connect with family and friends, and for many, […]
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In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this […]
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CureDuchenne Fuerza 2025 Unites Mexico and Global Duchenne Community in Landmark Event
CureDuchenne Fuerza 2025, hosted by the CureDuchenne International Program on October 25, 2025, brought together more than 400 attendees […]
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We shout, ‘Not today, Duchenne!’ and Duchenne whispers back
My oldest son, Max, was diagnosed with Duchenne muscular dystrophy (DMD) in 2010, when he […]
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Welcoming the New Members of PAAC for Fall 2025
PPMD’s Adult Advisory Committee (PAAC) recently expanded with 19 inspiring new members, bringing the committee […]
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Exoskeletons Improve Movement for Those with Neuromuscular Diseases
Exoskeletons are wearable devices that can provide physical support and improve functional mobility for people […]
