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MDA Ambassador Guest Blog: ALS is Not the End of My Story
Monica Torres is a 42-year-old mom of 6. Monica was born and raised in Puerto
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Global Nonprofit CureDuchenne to Host FUTURES National Conference for the Duchenne and Becker Muscular Dystrophy Community on May 21-24 in Orlando, FL
Four-Day Conference Will Feature Leading Experts, Inspirational Speakers,and the Latest Care and Treatment Insights Newport
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Comedian Fiona Cauley Shares Humor While Raising Disability Awareness
Stand-up comedian Fiona Cauley has appeared on “The Tonight Show Starring Jimmy Fallon,” toured with
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I am watching a child lose his independence for the third time
My son Charlie has recently been unable to get into his power wheelchair on his
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Clinical Research Alert: Phase 3 Study of Pridopidine in Individuals with ALS
Researchers at participating clinical research sites are seeking individuals with amyotrophic lateral sclerosis (ALS) for
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CureDuchenne’s annual conference to highlight research, family support
CureDuchenne will host its annual Futures National Conference, a four-day event focused on bringing education,
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The Why Behind MDA’s Campaign to Support Family Caregivers
Carlee Weber and Nicole Lucas This month, the Muscular Dystrophy Association (MDA) is launching an
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Catch up on PPMD Together: Philadelphia
This past weekend, PPMD kicked off our 2026 PPMD Together series in Philadelphia, Pennsylvania. Individuals
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With my mobility severely limited, I’m in dire need of a wheelchair
One problem dealing with a progressive disease like facioscapulohumeral muscular dystrophy (FSHD) is that there’s
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Rethinking Exercise in Duchenne Muscular Dystrophy: What New PT/OT Research Means for Families
Emerging guidance offers cautious optimism—here’s what parents and caregivers should know For years, families affected by
