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Avidity Biosciences Announces Positive New Data from EXPLORE44® and EXPLORE44-OLE™ Phase 1/2 Studies
Today, Avidity Biosciences announced new data from its EXPLORE44® and EXPLORE44-OLE Phase 1/2 studies of […]
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In life with FSHD, find as much joy and laughter as you can
My facioscapulohumeral muscular dystrophy (FSHD) causes a variety of symptoms that affect every aspect of […]
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Many of us with DMD need greater access to personal finance tools
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Chronic illness or not, we all need to support each other
I’ve written columns about community and connection. I chose these topics because they’re relevant not […]
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
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I’m taking action while living with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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I’ve learned to embrace assistive equipment for my sons with DMD
I spent part of this week with three of my sons in Denver. On Wednesday, […]
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Clinical Study Alert: Phase 2 Study of Brogidirsen in Boys with DMD
Researchers at NS Pharma are seeking boys with Duchenne muscular dystrophy (DMD) amenable to exon 44 […]
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Scientists develop way to make DMD treatments work better
Researchers have developed a way to enhance the efficacy of exon-skipping therapies for Duchenne muscular […]
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Living with Duchenne muscular dystrophy but choosing opportunity
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]