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How my fight for inclusive access to a soccer stadium paid off
As a Duchenne muscular dystrophy survivor, I’ve spent much of my life on the outside […]
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NHL All-Star Troy Terry and Wife Dani to Host CureDuchenne Golf Shootout on September 12–13, Continuing a Legacy of Impact for Duchenne Muscular Dystrophy
Event Has Raised Over $6.3 Million to Date, Advancing Lifesaving Research and Therapies for Individuals […]
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Analyses show benefits of DMD gene therapy Elevidys
The one-time gene therapy Elevidys (delandistrogene moxeparvovec-rokl) was associated with stabilizations in motor function for […]
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Life with Lily #2: Advocating for Disability Rights
Advocacy doesn’t always look bold or dramatic. Most of the time, it’s quiet, messy, and […]
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Understanding the Threats to the ACL – and What It Means for You
In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic […]
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How to turn weakness into strength in life with muscular dystrophy
In September 1995, I began my first teaching job at a New Hampshire public middle […]
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How to Plan the Perfect Summer Staycation
As the cost of living continues to rise in the United States, many individuals and […]
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When things go wrong, try to maintain an attitude of gratitude
If you’ve read any of my recent columns, you know that I’ve had a lot […]
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DMD gene therapy Elevidys wins conditional approval in Japan
The Japanese Ministry of Health, Labour, and Welfare (MHLW) has conditionally approved the gene therapy […]
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Duchenne muscular dystrophy gene therapy
Scientists present current evidence for a new gene therapy for Duchenne muscular dystrophy called delandistrogene […]
