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Volunteers Make a Big Impact on the MDA Community
Almost 2,000 people have volunteered for MDA in the past year. These dedicated individuals devoted […]
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Stem Cell Innovations Drive Advances in Muscle Regeneration
A group of scientists and patient advocacy organizations met in July 2024 to discuss one […]
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Innovations in GNE Myopathy Research
GNE myopathy is an inherited neuromuscular disease with an estimated prevalence of 1 to 9 […]
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Milestone Moment: A Look Back at the First Gene Therapy Trial for DMD
In 2006, MDA funded the first-ever gene therapy trial for Duchenne muscular dystrophy (DMD). This […]
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Why You Should Practice Shared Healthcare Decision-Making
Facing a neuromuscular disease diagnosis can be overwhelming, but the more that individuals and their […]
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From the Ski Slopes to the Spirit of Inclusion
When I was learning to ski as a child in Washington state, like anyone new […]
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Early preventive heart treatment extends survival in DMD: Study
Preventive treatment with standard heart medications — when given before the onset of cardiac troubles […]
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Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases
Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the […]
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FSHD progression requires me to lighten my music rig
I’ve played music since I was 5 years old. My first professional playing job was […]
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MDA’s Development Grants Support Promising Researchers Entering the Neuromuscular Field
Since its founding 75 years ago, MDA has been the nation’s largest nonprofit supporter of […]
