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Long-term Agamree data show better growth, lower fracture risk
Agamree (vamorolone), a type of corticosteroid approved to help preserve muscle function in people with
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MDA Ambassador Guest Blog: How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT
Kevin Crowley is a 48-year-old father of two, husband to the most beautiful woman in
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Dancing to the beat and singing to the melody to find a cure for FSHD
I’m a member of the Western Pennsylvania chapter of the FSHD Society, which serves as
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Clinical Research Opportunity: Phase 3 Study of Cladribine in People with Generalized Myasthenia Gravis (gMG)
Researchers at EMD Serono Research & Development Institute, Inc. are working to better understand generalized myasthenia
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My Journey to Gratitude is Paved with Acceptance and Advocacy
I’m John Krepps and I am living with Charcot Marie Tooth disease, also known as
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Clinical Research Alert: Phase 1 Study of AMX0114 in Adults with ALS
Researchers at Amylyx Pharmaceuticals, Inc. are seeking adults with amyotrophic lateral sclerosis (ALS) to participate in
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Physical Therapy Can Make All the Difference in Duchenne
Record-Breaking Impact During World Duchenne Awareness Month Each September, World Duchenne Awareness Month shines a
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How the disability community benefits from having more choices
When in the course of human events, it becomes necessary to make choices, we must
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Tips for Smooth Holiday Travel
The holidays are a special time to connect with family and friends, and for many,
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In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this
