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Living with Duchenne has given me more freedom
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Clinical Research Alert: Phase 1/2 Study of SGT-003 in Boys with DMD
Researchers at Solid Biosciences are seeking boys with Duchenne muscular dystrophy (DMD) to participate in a […]
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Five Common Corticosteroid Questions and Considerations
Corticosteroids are anti-inflammatory drugs that play an important role in treating some neuromuscular diseases. These […]
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Adding 4 more legs to the 26 already in my family
For years, I told the kids we couldn’t get another dog unless something happened to […]
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MDA Ambassador Guest Blog: Someone Like Me
My name is Santana Gums and I have LGMD-2b. I live in Arizona and work […]
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Gear Up and Give Back with Violent Gentlemen Hockey Club
Limited-Edition Violent Gentlemen Hockey Club Tees Benefiting the CureDuchenne. Your purchase makes a difference.Every tee […]
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Simply Stated: Updates in Charcot-Marie-Tooth Disease (CMT)
Charcot-Marie-Tooth disease (CMT) encompasses a group of inherited disorders that affect movement and sensation in […]
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Clinical Research Alert: Observational Study on Parent and Caregiver Perspectives on Adherence to DMD Care
Researchers at Albany Medical College are seeking parents and caregivers of children with Duchenne muscular dystrophy […]
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Focusing on ‘strength’ this Muscular Dystrophy Awareness Month
Across the U.S., the neuromuscular disease community is preparing to mark Muscular Dystrophy Awareness Month […]
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Clinical Research Alert: Natural History Study of Individuals with Non-Dystrophic Myotonias
Researchers at the Center for Health + Technology at the University of Rochester are seeking individuals […]
