-
Insights by Ira: From Telethons to Treatments – Decades of Impact
When I think of Labor Day Weekend every September, it truly invokes so many emotions […]
-
Exon-skipping DMD therapy gets FDA orphan drug status
The U.S. Food and Drug Administration (FDA) has granted orphan drug status to NS-051/NCNP-04, an […]
-
Being part of a disabled community means learning to trust
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
-
An open letter to doctors who aren’t familiar with limb-girdle MD
Dear doctors, I am writing to share my knowledge about living with a rare, chronic […]
-
Ready for Respiratory Season: Keeping You and Your Family Healthy
With the start of school and the approach of winter, respiratory viruses are expected to […]
-
WEBINAR: Avidity EXPLORE44-OLE Functional Data Update
Avidity reports multiple functional improvements with Del-zota for individuals with Duchenne amenable to skipping exon […]
-
CureDuchenne Announces Fuerza 2025: A Landmark Conference in Mexico City on October 25 Focused on Duchenne and Becker Muscular Dystrophy
Full-Day Conference Will Bring Education, Support, and Connection to Families and Healthcare Providers Serving the […]
-
14th Annual CureDuchenne Golf Shootout Hosted by Dani and Troy Terry Raises Over $550,000
Event Proceeds Will Advance Research and Support the CureDuchenne Clinic within the Neuromuscular Program at […]
-
MDA Ambassador Guest Blog: Better All the Time: Fighting Against Bitterness
Chase Rankin was diagnosed with Friedreich’s ataxia in the 7th grade. He is now a […]
-
With DMD, the transition to adulthood brings many unknowns
One thing I love about living in the Midwest is enjoying all four seasons. The […]
