-
Sign up to hear from CureDuchenne
Newsletter signup “*” indicates required fields Email* Area of interest* Research Family services Events Ways […]
-
Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN
October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, […]
-
2026 MDA conference to focus on ‘innovation driving us forward’
The Muscular Dystrophy Association (MDA) has announced the agenda for its 2026 MDA Clinical & Scientific […]
-
Cooking with a Disability? Yes, Chef!
Growing up as a full-time wheelchair user living with myofibrillar myopathy (MFM), 21-year-old Gabby DiSalvo […]
-
I ‘muscle through’ LGMD challenges with a little bit of humor
I’ve always had a robust sense of humor. Some people have told me that I’m […]
-
20th Annual Sam’s Night Event Marks Two Decades of Community Impact, Growth, and Hope for Families Living with Duchenne
The Killian family, of Rockwall, TX, are celebrating a record-breaking fundraising milestone with their annual […]
-
Newly Published Study Evaluates Patients’ and Caregivers’ Acceptable Risk from Gene Therapy
A new threshold study, “Re-evaluating Acceptable Risk of Death from Gene Therapy,” has been published […]
-
Duchenne MD therapy brogidirsen shows long-term benefit in boys
Brogidirsen (NS-089/NCNP-02), NS Pharma’s investigational therapy for people with Duchenne muscular dystrophy (DMD) who are […]
-
MDA Ambassador Guest Blog: Why I am Speaking Up for Our Community at MDA Hill Day
Faith is 14 years old and lives in Texas. She is a freshman in high […]
-
Appreciating kind gestures as my health needs increase
In the past couple months, I’ve had more medical challenges than usual. My right arm […]
