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Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles
In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax
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Solid Biosciences Reports Progress on Next-Generation Gene Therapy
Solid Biosciences reports that 33 children have now been dosed in their SGT-003 gene therapy
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What to Know Before You Start Adaptive Driving
For people living with neuromuscular diseases, driving can be more than a convenience — it
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Capricor provides regulatory update on Deramiocel for Duchenne
Capricor Therapeutics, which received early funding from CureDuchenne, said the FDA has requested the full
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FDA names once-daily (Z)-endoxifen an orphan drug for Duchenne
The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to (Z)-endoxifen for
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People have told me I’m a strong person, but what is strength?
I’d like to share my thoughts on what the word “strength” means. The United States
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Guest Voice: Pushing for access to Duchenne clinical trials in Malaysia
My family and I are part of a community of boys, men, and families living
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3 power wheelchairs are forcing the question — remodel or move?
I love my house and the home life my husband, Jason, and I have created.
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MDA Ambassador Guest Blog: Adapting and Prioritizing a Healthy Lifestyle as I Age
Leslie Krongold is 63 years old and lives in Mendocino, California where she keeps busy
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Executive skills in DMD boys dip around age 8, improve by teens
In boys with Duchenne muscular dystrophy (DMD), executive skills — essentially the brain’s self-management tools,
