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PPMD Celebrates 30th Anniversary and Three Decades of Progress with Annual Advocacy Conference
Over the past three decades, PPMD has driven Congress to enact legislation that has transformed federal […]
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PPMD Hosts Town Hall on Clinical Trials During 2024 Advocacy Conference
The PPMD Town Hall on Clinical Trials, taking place on Monday, March 4th during PPMD’s […]
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A blessing in disguise: What has my FSHD given me?
I’m reading “Eyes to the Wind: A Memoir of Love and Death, Hope and Resistance” […]
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5 things I didn’t anticipate about caring for teens with Duchenne MD
Life is lived in seasons, at least here in Nebraska, where we experience all four […]
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LGMD scientific workshop gathers experts to tackle unmet needs
Patients and experts in limb-girdle muscular dystrophy (LGMD), along with drug developers, community leaders, and […]
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15th Annual Champions to CureDuchenne Returns to The University of Texas Golf Club on April 6 to Find a Cure for Duchenne Muscular Dystrophy
“Disco For Duchenne” Gala Features Dancing, Drinks, a Culinary Experience and More to Help Advance […]
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CureDuchenne Webinar with Dyne Therapeutics | Advancing the Promise of FORCE to Deliver for Patients
Dyne Therapeutics will present initial clinical data, first released on January 3rd, 2024, from the […]
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New cell-based study reveals autoimmune mechanism in DM2
A cell-based study revealed the biological mechanism behind the increased tendency for people with myotonic […]
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Breaking news: Rare Disease Day Congressional Hearing to Address the BENEFIT Act
On Thursday, February 29th, Rare Disease Day, the House Energy and Commerce Committee will hold […]
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In choosing a college, my son with DMD is already winning
I am a competitive former college athlete married to a someone who is equally competitive […]
