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Finding the right words to describe our life experiences
Words matter. For that reason, I’d like to share my thoughts on language, chronic illness,
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Dyne Therapeutics Announces Positive Topline Results from Phase 1/2 DELIVER Trial of Z-Rostudirsen in Duchenne
Dyne Therapeutics has announced positive topline results from its Registrational Expansion Cohort (REC) of the
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Clinical Research Alert: Phase 1b Study of SRD-001 in Adults with DMD-Related Cardiomyopathy
Researchers at Sardocor Corp are seeking adults with cardiomyopathy (heart disease) secondary to Duchenne muscular dystrophy
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Holiday Gift Wrapping Made Easier: Accessible Tips & Tricks
As the holidays approach, ‘tis the season for holiday hacks and tips. One key (and
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Protected: Honoring Every Journey in Duchenne and Becker: Advancing Therapies, Access, and Care For All
This content is password protected. To view it please enter your password below: Password: The
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Planning a ‘Krank’ Christmas and getaway with accessibility in mind
Navigating the holidays creates some logistical problems for my family. It’s not because there are nine
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Progress Through Partnership: MDA’s Collaborative Research Grants Drive Neuromuscular Science Forward
Progress in neuromuscular research has always depended on collaboration — scientists, families, advocates, and organizations
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DMD treatment Kymbee launches with support program for patients
Upsher-Smith Laboratories is launching a new corticosteroid treatment for people with Duchenne muscular dystrophy (DMD)
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MDA Updates on Air Travel Advocacy
With the busy holiday travel season, many members of the neuromuscular community may be wondering
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Hope takes center stage as musical honors healthcare professionals
Last month, I attended “The Sun Will Shine,” a jukebox musical staged at The Star
