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MDA Advocacy Team Reports Updates in Newborn Screening Legislation
This year has been an eventful year for newborn screening in neuromuscular disease, with potential […]
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Understanding BiPAP Webinar: Why It’s Needed, What Gets in the Way, and, How to Increase Compliance
The PPMD team was recently joined by pulmonologist Dr. Janaki Paskaradevan, psychologist Dr. Allison Clarke, […]
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How I advocate for my community as a girl with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Head Back-to-School in Style with Adaptive Fashion
For many families with kids, the end of summer includes preparations for heading back to […]
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Exondys 51 may help protect DMD heart function: Study
Duchenne muscular dystrophy (DMD) treatment Exondys 51 (eteplirsen) may help protect the heart as well […]
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Living with Duchenne has given me more freedom
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Clinical Research Alert: Phase 1/2 Study of SGT-003 in Boys with DMD
Researchers at Solid Biosciences are seeking boys with Duchenne muscular dystrophy (DMD) to participate in a […]
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Five Common Corticosteroid Questions and Considerations
Corticosteroids are anti-inflammatory drugs that play an important role in treating some neuromuscular diseases. These […]
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Adding 4 more legs to the 26 already in my family
For years, I told the kids we couldn’t get another dog unless something happened to […]
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MDA Ambassador Guest Blog: Someone Like Me
My name is Santana Gums and I have LGMD-2b. I live in Arizona and work […]
