-
First Semester in a New York Minute
Jonathan Lengel is an actor, singer, and performer best known for his role as Archie […]
-
Hoyer Lifts and Beyond: Choosing the Right Lift Device
For those living with limited mobility from a neuromuscular disease or other disability, assisted transfers […]
-
Patients with more siblings report being better prepared for adulthood
Adolescents and young adults with Duchenne (DMD) or Becker muscular dystrophy (BMD) who have more […]
-
Solid Biosciences Shares Initial Data from INSPIRE DUCHENNE Study of Gene Therapy Candidate SGT-003
Solid Biosciences Inc. has announced positive initial data from the company’s Phase 1/2 INSPIRE DUCHENNE […]
-
MD trial update: 5 OPMD patients safely treated with gene therapy
Five people with oculopharyngeal muscular dystrophy (OPMD) — a type of muscular dystrophy marked by […]
-
A week in the life of an overwhelmed caregiver
I’ll be straightforward about caregiving: It’s exhausting. I’m the mother of seven children: Lexi, 23, […]
-
Phase 1 trial of SAT-3247 finishes enrolling healthy volunteers
A Phase 1 clinical trial testing SAT-3247, an oral treatment candidate for Duchenne muscular dystrophy […]
-
It started with shoes, but now everything is too heavy
One thing I was born with, aside from my facioscapulohumeral muscular dystrophy (FSHD), was narrow […]
-
World of Warcraft event raises $2M to support DMD research, care
A fundraiser through the online role-playing game World of Warcraft has raised more than $2 […]
-
Growing into limb-girdle muscular dystrophy — and, better, marriage
I’ve been married for 11 years. Before then, as I grew up with what I […]
