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A Safety Update on ELEVIDYS
We are deeply saddened by the loss of a young member of our community following […]
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Making an Impact on Day 1 of the MDA Clinical and Scientific Conference
“This is a milestone year,” said Donald S. Wood, PhD, MDA’s President and CEO, as […]
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MDA 2025: Conference begins, marking another year of progress
The Muscular Dystrophy Association‘s (MDA) annual Clinical & Scientific Conference kicked off over the weekend, […]
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WATCH: Capricor Therapeutics – Update on Deramiocel for Cardiomyopathy in Patients with Duchenne (Webinar Recording)
Capricor Therapeutics recently joined PPMD for a community webinar to provide an update on their […]
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Key Updates from the 2025 MDA Clinical & Scientific Conference
The 2025 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference is underway in Dallas, Texas, […]
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Celebrating 25 Years of Impact: MDA’s Wings Over Wall Street Gala Honors Leaders in ALS Research and Advocacy
For a quarter of a century, MDA’s Wings Over Wall Street has brought the ALS […]
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PPMD Hosts Duchenne Early Intervention Symposium
This May, the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) plans to […]
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On a rough day, insight into my sons’ life with DMD, wheelchairs
My husband, Jason, and I are parents to seven children: Lexi, 23; Max, 19; Chance, […]
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The Impact of the Continuing Resolution and Federal Budget Cuts to the CDMRP on Duchenne Research
Today, the Senate passed a Continuing Resolution (CR) that includes a 57% cut to the […]
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MDA Ambassador Guest Blog: Make Sense? Say Yes!
Grace LoPiccolo, 21, of St. Louis, Missouri, was diagnosed with CMT-1A at the age of […]
