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MDA Ambassador Guest Blog: How the Power of a Few People (and a Dog) Can Change Your World
David Daw is 56 years old and lives in Kingston New York with his wife […]
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Top 5 Things to Know About MDA’s Efforts to Protect Medicaid
In 2025, MDA’s advocacy team has focused on protecting Medicaid from Congressional budget cuts. We […]
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My son’s Make-A-Wish experience at WrestleMania was unforgettable
I’m writing this column as my husband, Jason, drives our family through the last rolling […]
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Why Multidisciplinary Care for ALS Yields Better Outcomes
For those living with neuromuscular diseases, including amyotrophic lateral sclerosis (ALS), access to quality care […]
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CureDuchenne set to host 2025 Futures conference in San Antonio
CureDuchenne will host its annual Futures National Conference May 22-25 in San Antonio, as part […]
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Reflecting on 2 positive years of life, love, and Duchenne
Two days ago I marked the second anniversary of my relationship with my girlfriend, Amanda. […]
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Watch: Duchenne Newborn Screening – Next Steps Following ACHDNC Dissolution (Webinar Recording)
Last week, PPMD and the Muscular Dystrophy Association provided insights into the current status of […]
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Sarepta: Gene therapy Elevidys has given ‘hope’ to DMD community
It’s been nearly two years since Elevidys (delandistrogene moxeparvovec-rokl), a gene therapy for Duchenne muscular […]
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Clinical Research Alert: Observational Study in Female Carriers of SMA and Their Biological Children
Researchers at Natera are seeking female carriers of spinal muscular atrophy (SMA) and their affected […]
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Highlighting a brief history of muscular dystrophy advocacy
I recently penned a column that took a surface look at the history of the […]
