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How to Maximize Your College Experience by Advocating for Accommodations and Accessibility
Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles […]
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A Message of Gratitude and Momentum: Leadership Changes at MDA
At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. […]
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Solve FSH invests $3M to advance ARM-201 as FSHD treatment
Solve FSH, a venture philanthropic organization, has invested $3 million to support the development of […]
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An Update on PPMD’s Continued Strategy for Advancing Duchenne Newborn Screening
On April 3, 2025, the U.S. Department of Health and Human Services (HHS) announced the […]
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A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy
Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close […]
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
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MDAS gala reminds me why I advocate for my community
On April 25, the Muscular Dystrophy Association (Singapore), or MDAS, celebrated its 25th anniversary with […]
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FDA set to decide on deramiocel for DMD cardiomyopathy
The U.S. Food and Drug Administration (FDA) is on track to make a decision about […]
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MDA Ambassador Guest Blog: Balancing Gracefully: A Mother’s Day Reflection from Ms. Wheelchair America
Tamara Blackwell is a faith-filled wife, mother, and advocate who empowers women to rise in […]
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In life with muscular dystrophy, it’s all about the planning
Living happily with limb-girdle muscular dystrophy, as I do, requires patience, a positive attitude, and […]
