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Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More
Amyotrophic lateral sclerosis (ALS) Immunotherapy Study Recruiting Coya Therapeutics has launched the phase 2 ALSTARS
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New Year, New Financial Plan: Tips to Get Your Budget Back On Track
For many families living with neuromuscular diseases, balancing health and disability-related expenses with rising household
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Understanding Spinal-Bulbar Muscular Atrophy
Spinal-bulbar muscular atrophy (SBMA) is a genetic disorder that affects muscles and nerves, leading to
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From Classroom to Courtroom: How Eric Arnold Navigated Accessibility in His Education and Career
Eric Arnold has built his life around sharing his skills and expertise with others —
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A Lifetime of Learning: From college to a Career in Disability Advocacy
I’ve always known that I love to learn. That passion has taken me places I
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The week we ran out of our emotional ‘leftovers’
When I was a young mom watching my oldest daughter, Lexi, move from upper elementary
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The Hidden Power of Self-Care in Caregiving
Caregivers often give so much of themselves that sometimes their own needs fade into the
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Meet Our 2025 MDA Quest Photo Contest Winners
Power play Congratulations to our 2025 Quest Media photo contest winner, Paula Saxton, of Doylestown,
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FDA Approves New Safety Warning and Revised Indication for ELEVIDYS
Today the FDA announced a significant update to the labeling and indication of ELEVIDYS for
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Protected: PPMD Continues to Drive Progress with Your Support
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