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I’m taking action while living with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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I’ve learned to embrace assistive equipment for my sons with DMD
I spent part of this week with three of my sons in Denver. On Wednesday, […]
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Clinical Study Alert: Phase 2 Study of Brogidirsen in Boys with DMD
Researchers at NS Pharma are seeking boys with Duchenne muscular dystrophy (DMD) amenable to exon 44 […]
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Scientists develop way to make DMD treatments work better
Researchers have developed a way to enhance the efficacy of exon-skipping therapies for Duchenne muscular […]
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Living with Duchenne muscular dystrophy but choosing opportunity
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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MDA Advocacy Team Reports Updates in Newborn Screening Legislation
This year has been an eventful year for newborn screening in neuromuscular disease, with potential […]
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Understanding BiPAP Webinar: Why It’s Needed, What Gets in the Way, and, How to Increase Compliance
The PPMD team was recently joined by pulmonologist Dr. Janaki Paskaradevan, psychologist Dr. Allison Clarke, […]
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How I advocate for my community as a girl with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Head Back-to-School in Style with Adaptive Fashion
For many families with kids, the end of summer includes preparations for heading back to […]
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Exondys 51 may help protect DMD heart function: Study
Duchenne muscular dystrophy (DMD) treatment Exondys 51 (eteplirsen) may help protect the heart as well […]
