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Long-term Duvyzat helps maintain motor skills in Duchenne MD
Long-term treatment with Duvyzat (givinostat) delays the loss of key motor skills in people with […]
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3 scientists honored for laying groundwork for DMD treatments
Note: This story was updated Sept. 10, 2025, to correct the secondary headline from Columbia […]
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Young adults with disabilities deserve housing to live with dignity
On Aug. 21, I wrote to my local newspaper here in Singapore about a gap […]
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Looking for solutions helps me overcome obstacles with Duchenne
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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MDA Ambassador Guest Blog: Life Lessons from My Service Dog (and Best Friend)
Lyza Weisman (23) was diagnosed at 13 months old with spinal muscular atrophy (SMA). She was raised […]
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Avidity Biosciences Announces Positive New Data from EXPLORE44® and EXPLORE44-OLE™ Phase 1/2 Studies
Today, Avidity Biosciences announced new data from its EXPLORE44® and EXPLORE44-OLE Phase 1/2 studies of […]
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In life with FSHD, find as much joy and laughter as you can
My facioscapulohumeral muscular dystrophy (FSHD) causes a variety of symptoms that affect every aspect of […]
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Many of us with DMD need greater access to personal finance tools
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Chronic illness or not, we all need to support each other
I’ve written columns about community and connection. I chose these topics because they’re relevant not […]
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
