-
CureDuchenne and Rady Children’s Health Come Together to Dedicate CureDuchenne Clinic and Expand Care for Children with Duchenne and Becker Muscular Dystrophy
Ribbon-Cutting Ceremony Marks a Major Step Forward in Expanding Access to Advanced Care and Cutting-Edge […]
-
Advocating for change with Duchenne muscular dystrophy
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
-
When it comes to patient safety, we can’t forget medical transport
Living with Duchenne muscular dystrophy means every trip to the hospital is key to my […]
-
Guest Ambassador Blog: What #MDAstrong Means to Me
Saida Mahoney is a college student from Oakland, CA, where she is majoring in performing […]
-
I’m living my best life, with or without Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
-
The life with Duchenne muscular dystrophy no one said I could live
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
-
Duchenne on the World Stage: World Duchenne Awareness Day at the United Nations
On Friday, September 5th, 2025 I had the honor of speaking at the United Nations […]
-
Community Voices: Disability Is Not a Disappearing Act
Chase the Entertainer “My name is Chase the Entertainer. I’m a mentally ill, physically disabled, […]
-
My son’s pneumonia reminds me I still don’t know what I don’t know
I expected today, as this column is published, to be long and exhausting. I’d been […]
-
Avidity reports multiple functional improvements with Del-zota for individuals with Duchenne amenable to skipping exon 44
As an early investor in Avidity Biosciences, we are pleased to share their exciting news […]
