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WEBINAR: Avidity EXPLORE44-OLE Functional Data Update
Avidity reports multiple functional improvements with Del-zota for individuals with Duchenne amenable to skipping exon […]
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CureDuchenne Announces Fuerza 2025: A Landmark Conference in Mexico City on October 25 Focused on Duchenne and Becker Muscular Dystrophy
Full-Day Conference Will Bring Education, Support, and Connection to Families and Healthcare Providers Serving the […]
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14th Annual CureDuchenne Golf Shootout Hosted by Dani and Troy Terry Raises Over $550,000
Event Proceeds Will Advance Research and Support the CureDuchenne Clinic within the Neuromuscular Program at […]
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MDA Ambassador Guest Blog: Better All the Time: Fighting Against Bitterness
Chase Rankin was diagnosed with Friedreich’s ataxia in the 7th grade. He is now a […]
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With DMD, the transition to adulthood brings many unknowns
One thing I love about living in the Midwest is enjoying all four seasons. The […]
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DM1 gene therapy trial seeks patients ages 10-50
A Phase 1/2 clinical trial testing SAR446268, an experimental gene therapy for myotonic dystrophy type […]
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WEBINAR: Edgewise
A Fireside Chat with Mike Kelly and Edgewise Therapeutics: A Duchenne Program Update Wednesday, September […]
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Hormone combination therapy delivers gains for men with FSHD
A combined regimen of testosterone and growth hormone led to significant improvements in muscle mass, […]
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No isn’t an option when living with Duchenne muscular dystrophy
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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MDA Ambassador Guest Blog: The Unequivocal Power of Using Your Voice
Living in Pennsylvania with her son, Victoria is an active volunteer with the Speak Foundation […]
