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This month, I’m celebrating my birthday and disability inclusion
This Saturday, I turn 30. My birthday lands on the same day that many of
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Becker Muscular Dystrophy Series Part 1: Neuromuscular Care and Genetics
The first session in PPMD’s Becker muscular dystrophy webinar series brought together clinical experts and
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Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN
October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast,
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2026 MDA conference to focus on ‘innovation driving us forward’
The Muscular Dystrophy Association (MDA) has announced the agenda for its 2026 MDA Clinical & Scientific
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Cooking with a Disability? Yes, Chef!
Growing up as a full-time wheelchair user living with myofibrillar myopathy (MFM), 21-year-old Gabby DiSalvo
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I ‘muscle through’ LGMD challenges with a little bit of humor
I’ve always had a robust sense of humor. Some people have told me that I’m
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20th Annual Sam’s Night Event Marks Two Decades of Community Impact, Growth, and Hope for Families Living with Duchenne
The Killian family, of Rockwall, TX, are celebrating a record-breaking fundraising milestone with their annual
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Newly Published Study Evaluates Patients’ and Caregivers’ Acceptable Risk from Gene Therapy
A new threshold study, “Re-evaluating Acceptable Risk of Death from Gene Therapy,” has been published
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Duchenne MD therapy brogidirsen shows long-term benefit in boys
Brogidirsen (NS-089/NCNP-02), NS Pharma’s investigational therapy for people with Duchenne muscular dystrophy (DMD) who are
