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Understanding MDA Advocacy’s Education Policy Efforts
At MDA, we believe that students in the neuromuscular community deserve to pursue their own […]
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What risk vs. reward looks like in the patient world
The reward is that the chocolate cake tastes delicious and leaves you with a nice […]
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Medicaid, Reconciliation Passage, and What Comes Next for Our Community
This past week, the federal reconciliation package officially passed. The legislation covers a broad range […]
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Giving thanks that my 3 sons with DMD have one another
Summer vacation in the Midwest typically begins in mid-May, and kids return to school by […]
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Disease progression reflected by blood protein signature: Study
Researchers identified a unique protein signature in the bloodstreams of adults with Becker muscular dystrophy […]
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Quest Podcast: Service Dogs, Inc. – Paws with a Purpose
In this Quest Podcast episode, we chat with a former attorney who left her law […]
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Simpler, Safer Transfers: Helpful Tips and Useful Equipment
Theresa Berner is an occupational therapist. Transferring from one spot to another, such as from […]
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With summer’s hardships come adventures in appreciation
Summer is a great time to be outside, travel, attend neighborhood gatherings, and spend time […]
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Webinar Recording: Edgewise Therapeutics – Update on Sevasemten Program in Becker and Duchenne
Edgewise Therapeutics recently joined PPMD for a community webinar for an update on the company’s […]
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Ifetroban continues to show cardiac protection in Phase 2 DMD trial
Ifetroban, Cumberland Pharmaceuticals’ investigational oral therapy, improved heart function and reduced cardiac damage biomarkers in […]
