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My late brother was my greatest teacher, in life and Duchenne
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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Izzy Camilleri Merges High Fashion and Adaptive Clothing Design
Toronto-based fashion designer Izzy Camilleri knows high fashion. Celebrated in the fashion world for decades, […]
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LGMD gene therapy gets FDA orphan drug designation
The U.S. Food and Drug Administration (FDA) has granted orphan drug designation to CRD-003, an […]
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Capricor plans Deramiocel resubmission to the FDA, pursuing both cardiac and skeletal muscle indications in Duchenne
Capricor Therapeutics, which received early funding from CureDuchenne, provided an update on their Deramiocel program […]
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MDA Ambassador Guest Blog: Life Lessons on My Journey with Becker Muscular Dystrophy
Jon Bruns is 56 years old. He is originally from South Dakota and now lives […]
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Catch Up on PPMD Together: Charlotte
This past weekend, PPMD held its last in person PPMD Together event of 2025 in […]
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Making adaptations while living with Duchenne muscular dystrophy
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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An infected bug bite landed me in the ER, but I was in great hands
My daughter Jill and my wife, Wendy, are my primary caregivers. In August, Jill and […]
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Quest Podcast: Precision Medicine: Mapping the Genetic Code for New Treatments
In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, […]
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MDA Summer Camp Alumni Put the Power in Powerhockey
Philadelphia Flyers PowerPlay Orange Team takes the court in Game 3 of the tournament. Photo […]
