-
Applications now open for MDA 2026 college scholarship awards
The Muscular Dystrophy Association (MDA) has opened applications for its 2026 college scholarship program, which provides financial support for students living with muscular dystrophy or a related neuromuscular disease. With the program now in its third year, the scholarships are available to students who are pursuing or planning to pursue full-time undergraduate degrees at accredited U.S.…
-
How to Choose a College with a Disability
When Abby Dreyer, a sophomore at Eastern Connecticut State University (ECSU), was choosing a college, she scheduled tours at ECSU and another college on the same day. Abby lives with spinal muscular atrophy (SMA) and uses a power wheelchair, so she contacted the schools ahead of time to tell them about her accessibility needs. “I…
-
PPMD’s Race to End Duchenne Team Member Claims Victories in Both 5K and 10K as Community Raises Funds for Duchenne and Becker Research and Care
PPMD celebrated a powerful and inspiring Walt Disney World® Marathon Weekend as part of its Race to End Duchenne endurance fundraising program this past weekend! PPMD runners, families, and supporters came together in Orlando, Florida, to raise more than $300,000 to accelerate research, improve care, and strengthen advocacy efforts for the Duchenne and Becker community.…
-
A medical oversight brings caregiving changes in my home
The end of the year offered up two beautiful weeks with my family and very few responsibilities. We canceled pool therapy, had no medical appointments, the kids were out of school, and I took a break from writing. We spent 10 days at home, just us. It was exactly what I needed. But the new…
-
Collective Advocacy at the MDA Clinical & Scientific Conference Propels Hope and Possibility
Each year, the MDA Clinical & Scientific Conference brings together clinicians, researchers, industry partners, and community members to share knowledge, spark innovation, and move the field of neuromuscular disease forward. Alongside the scientific sessions and research updates, an equally powerful convening takes place: the annual meeting of the NeuroMuscular Advocacy Collaborative (NMAC). This gathering unites nearly…
-
MDA summer camp now accepting 2026 applications
The Muscular Dystrophy Association (MDA) announced that registration is now open for its 2026 summer camp program. The program is open to kids and teens ages 8 to 17 who have muscular dystrophy or a related neuromuscular disease. Families can submit applications for their campers via an online portal. This summer, MDA will host 23…
-
Entrada continues to advance multiple Duchenne exon-skipping programs
As an early investor in Entrada Therapeutics, we are pleased to share that in 2026 Entrada plans to have four clinical-stage programs in Duchenne – for individuals amenable to skipping exon 44, exon 45, exon 50 or exon 51. Exon 44: They are on track to report data from the first cohort of the ELEVATE-44-201…
-
My animal companions have helped chart my life with Duchenne
Jan. 8 marks four years since my family welcomed my animal companion, Pandan, into our home to foster. Since the new year began, I have been reflecting on how such companionship enters our lives quietly and unexpectedly, and without ceremony. Pandan is a rescued street dog, known locally as a “Singapore Special,” a term for mixed-breed…
-
MDA Ambassador Guest Blog: Finding My Rhythm Again: The Power of the Chair Workout
Rebecca Gregg has limb-girdle muscular dystrophy (LGMD2B), is a board member of the LGMD Awareness Foundation, and is an MDA Ambassador. She lives in Edmond, OK, with her husband, David, and two daughters, Addison and Lauren. In her free time, she makes jewelry for her Etsy shop. My family including, my husband, David and my…
-
Top 10 muscular dystrophy news stories of 2025
Throughout 2025, Muscular Dystrophy News Today brought you daily coverage of the latest muscular dystrophy (MD)-related clinical research and scientific breakthroughs. Here are the year’s top 10 most-read stories we published last year, each with a brief description. No. 10 — FSHD patients sought for first EPI-321 clinical trial Enrollment has begun for a first-in-human…
