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Miner Moebel Family
My grandson Shepherd has been living with his Duchenne diagnosis for 5 years. Since that […]
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Aviles Family
Our Duchenne journey began like so many others. Gabe, our fourth son, wasn’t reaching his […]
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Thank You for Honoring PPMD’s 30th Anniversary and Fighting for Every Future With Us
As I’ve reflected on the incredible journey of PPMD these past few weeks, I am […]
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PPMD Awards $250,000 to Support Clinical Research Network for Duchenne Babies Identified by Newborn Screening
PPMD is excited to announce a $250,000 award to Bo Hoon Lee, MD, from the […]
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Catch Up on PPMD’s Inaugural PPMD Together Event in Cincinnati, Ohio
On April 19th and 20th, PPMD launched our brand new PPMD Together meeting series in […]
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Most people with DM1 develop cardiac problems: Danish study
Most people with myotonic dystrophy type 1 (DM1) develop heart problems, according to a Danish study that followed […]
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I’m learning to treat my boys with DMD as individuals, and not a trio
I have three sons with Duchenne muscular dystrophy (DMD). Max, 18, Rowen, 15, and Charlie, […]
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Napa in Newport Celebrates a Decade of Impact and Raises More Than $1.35M for CureDuchenne
Southern California’s Premier Wine Event Brought Together Acclaimed Napa Valley Vintnersand Philanthropists to Drive Research […]
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Weighing the pros and cons of occupational and physical therapy
In my last column, I wrote about the increasing difficulties I’m having safely navigating my […]
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Glucocorticoid use can aid breathing ability in Duchenne adults: Study
Glucocorticoid use can help maintain breathing ability and arm function in adults with Duchenne muscular […]
