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Most people with DM1 develop cardiac problems: Danish study
Most people with myotonic dystrophy type 1 (DM1) develop heart problems, according to a Danish study that followed […]
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I’m learning to treat my boys with DMD as individuals, and not a trio
I have three sons with Duchenne muscular dystrophy (DMD). Max, 18, Rowen, 15, and Charlie, […]
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Napa in Newport Celebrates a Decade of Impact and Raises More Than $1.35M for CureDuchenne
Southern California’s Premier Wine Event Brought Together Acclaimed Napa Valley Vintnersand Philanthropists to Drive Research […]
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Weighing the pros and cons of occupational and physical therapy
In my last column, I wrote about the increasing difficulties I’m having safely navigating my […]
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Glucocorticoid use can aid breathing ability in Duchenne adults: Study
Glucocorticoid use can help maintain breathing ability and arm function in adults with Duchenne muscular […]
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Capricor Therapeutics Announces Positive Type-B Meeting with FDA for CAP-1002 Program for Duchenne Muscular Dystrophy
Capricor Therapeutics, which received early funding from CureDuchenne, has shared news of positive interactions with […]
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Duchenne UK and PPMD Award $500,000 to Evaluate Safety, Tolerability of Muscle Progenitor Cells in Phase 1 Trial
PPMD and Duchenne UK are excited to announce the recipient of their Joint Call for […]
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Ohio to Begin Screening Newborns for Duchenne
PPMD is excited to announce another significant milestone in Duchenne newborn screening: Ohio will be […]
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2-year EDG-5506 treatment helps preserve motor function in BMD
Oral treatment with EDG-5506, now known as sevasemten, continued to stabilize muscle function after two years […]
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PPMD Celebrates 30th Anniversary with Launch of PPMD Together Meeting Series in Cincinnati, Ohio
PPMD is excited to mark its 30th anniversary at the launch of the PPMD Together meeting […]
