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I’m thankful our doctor can have telehealth sessions with us
Spring is by far the busiest season for my family. I have seven children who […]
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Welcoming Jodi Wolff, PhD: A Passionate Advocate Joins PPMD’s Team as Chief Program Officer
We are thrilled to welcome the newest addition to the PPMD team, Jodi Wolff, PhD, […]
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Comprehensive Genetic Counseling Resource for Dystrophinopathies Published: A Collaborative Effort by PPMD and Expert Genetic Counselors
PPMD is pleased to share that a new genetic counseling practice resource for dystrophinopathies, including […]
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Heaton Family
Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at […]
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New type of muscular dystrophy discovered after girl’s diagnosis
Researchers have discovered a new, unrecognized type of muscular dystrophy that’s caused by inherited mutations […]
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Miner Moebel Family
My grandson Shepherd has been living with his Duchenne diagnosis for 5 years. Since that […]
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Aviles Family
Our Duchenne journey began like so many others. Gabe, our fourth son, wasn’t reaching his […]
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Thank You for Honoring PPMD’s 30th Anniversary and Fighting for Every Future With Us
As I’ve reflected on the incredible journey of PPMD these past few weeks, I am […]
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PPMD Awards $250,000 to Support Clinical Research Network for Duchenne Babies Identified by Newborn Screening
PPMD is excited to announce a $250,000 award to Bo Hoon Lee, MD, from the […]
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Catch Up on PPMD’s Inaugural PPMD Together Event in Cincinnati, Ohio
On April 19th and 20th, PPMD launched our brand new PPMD Together meeting series in […]
