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MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time
Dwayne Wilson is 57 years old. He is originally from Southern California and lived in
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Independent committee favors continuing Elevidys dosing in trials
An independent data monitoring committee (DMC) favors continuing dosing Elevidys (delandistrogene moxeparvovec-rokl) to people with
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this
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Wake up to the achievements of the disability rights movement
This August will mark 40 years since I was diagnosed with what we eventually discovered
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The Future of Newborn Screening for Duchenne: Moving Forward After the ACHDNC’s Dissolution
Yesterday, we received news that the Advisory Committee on Heritable Disorders in Newborns and Children
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Living with Duchenne muscular dystrophy feels like a gamble
I don’t gamble. I don’t know how to do it. I wouldn’t even know how
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Potential DMD treatment KER-065 shows safety in Phase 1 study
KER-065, a potential treatment for Duchenne muscular dystrophy (DMD) and other neuromuscular diseases, showed a
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One Family’s Decades of Dedication to MDA Summer Camp
Craig Helget and his brother, Terry Helget, at MDA Summer Camp in 1985. The Helget
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Recap: PPMD Together: Minneapolis, MN
This past weekend, PPMD was joined by families, individuals with Duchenne and Becker, clinicians, researchers,
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Quest Podcast: Finding Joy in the Midst of Change
In this Quest Podcast episode, we chat with MDA Ambassador Jess Westman about embracing individuality
