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I’ll continue to do what I love, despite the FSHD ‘hangovers’
My wife, Wendy, and I had a wonderful Sunday recently. We rose early and hit […]
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$10M in prizes offered toward work on FSHD treatments
The venture philanthropy organization SOLVE FSHD is offering $10 million in prizes for innovators who […]
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Catch up on PPMD Together: Virtual Edition – A Gathering of Families for Connection, Support, and Growth
Last month, families from around the world came together for PPMD Together: Virtual Edition. This […]
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Arrakis’ RNA-targeted oral therapies showing promise for DM1
Arrakis Therapeutics’ investigational RNA-targeted small molecule (rSM) therapies were found to work as intended in […]
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When art and advocacy meet onstage
Last Saturday, I performed a monologue titled “Connection” at the Enabling Lives Festival here in […]
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Sarepta to develop Arrowhead’s muscular dystrophy treatments
Sarepta Therapeutics is acquiring from Arrowhead Pharmaceuticals the exclusive global rights to develop ARO-DUX4 and […]
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Fashion | Dune London: Bags
With the festive season now in full swing, why not invest in something extra special […]
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When the Power of Humanity Expands into the Digital Realm: “The Remarkable Life of Ibelin” Review
“The Remarkable Life of Ibelin” Review by Hawken Miller, Writer and Advocate When Mats Steen, […]
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Couch shopping awakened me to a focus on my children with DMD
I think about things deeply, rolling ideas around in my head until they make sense. […]
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DMD carrier with heart failure has healthy pregnancy: Case study
A woman who developed heart failure due to Duchenne muscular dystrophy (DMD) was diagnosed and […]
