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The CureDuchenne International Outreach Program: Expanding Duchenne Care Beyond Borders
By Debra Miller, Founder and CEO of CureDuchenne Duchenne International Outreach: Bridging Gaps in Duchenne […]
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Corticosteroid at low dose may help with muscle damage, inflammation
Once a week treatment with a corticosteroid was seen to lower some biomarkers of muscle […]
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Race to End Duchenne Kicks Off 20th Anniversary at Walt Disney World Marathon Weekend
The Race to End Duchenne program is celebrating our 20th anniversary in 2025, and we […]
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Stuck in limbo with both accessible vans out of commission
I live in rural Nebraska with my husband and our seven children. Three of them […]
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Advance the Research Evolution with The Duchenne Registry
Everyone can help advance the research evolution for Duchenne and Becker. Bringing data sources together […]
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DYNE-101 is leading to functional gains for DM1 patients in trial
The investigational therapy DYNE-101 worked as expected and led to functional improvements for people with […]
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PPMD Advocacy in the 119th Congress and the 47th Administration
As the 119th Congress and the 47th Administration prepare to take office, PPMD is committed […]
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PPMD Hosts 2025 Duchenne Healthcare Professionals Summit in San Diego, California
PPMD is excited to host the sixth in-person Duchenne Healthcare Professionals Summit in San Diego, […]
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GIVI-MPC named FDA orphan drug for treatment of Becker MD
The U.S. Food and Drug Administration (FDA) has granted IPS Heart’s GIVI-MPC — a stem cell […]
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How my FSHD progression leads to out-of-body experiences
Many times over the years since the 1989 car crash that nearly killed me, I’ve […]
