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DMD treatment SAT-3247 safe in trial, shows early signs of efficacy
Satellos Bioscience’s SAT-3247 was safe, well-tolerated, and showed initial signs of increasing muscle strength in […]
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Speech Devices Improve Communication When ALS Affects the Voice
As amyotrophic lateral sclerosis (ALS) progresses, it affects many aspects of daily life. One of […]
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Why MDA’s Kickstart Program Is a Game-changer for Gene Therapies
All of the more than 400 neuromuscular diseases MDA covers are rare. However, within many […]
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WAV Taxis and Rideshares Open Doors for Inclusive Transportation
They say you can get anything in New York City — and that includes wheelchair-accessible […]
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Advocating for Himself Helps Matt Curcio Serve Others
Matt Curcio has spent his life advocating for his inclusion and accessibility needs. Now, he […]
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Navigating Life with MDA Community Education Programs
The neuromuscular community encompasses a wide array of experiences. No two disease journeys are the […]
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MDA Milestone: How ‘Fill the Boot’ Was Born
In 1952, a group of families affected by muscular dystrophy approached a Boston fire station […]
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How We’re Changing the Narrative on Disability in Hollywood
For most of my life, I accepted stories about what it meant to be disabled. […]
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Understanding Congenital Myasthenic Syndrome: Causes and Treatments
Congenital myasthenic syndrome (CMS) is a rare genetic condition that disrupts communication between nerves and […]
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Motherhood, my life purpose, makes caregiving easier
It’s been a couple of weeks since my last column. I’ve missed writing them. I […]
