-
Chronic illness or not, we all need to support each other
I’ve written columns about community and connection. I chose these topics because they’re relevant not
-
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this
-
I’m taking action while living with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community
-
I’ve learned to embrace assistive equipment for my sons with DMD
I spent part of this week with three of my sons in Denver. On Wednesday,
-
Clinical Study Alert: Phase 2 Study of Brogidirsen in Boys with DMD
Researchers at NS Pharma are seeking boys with Duchenne muscular dystrophy (DMD) amenable to exon 44
-
Scientists develop way to make DMD treatments work better
Researchers have developed a way to enhance the efficacy of exon-skipping therapies for Duchenne muscular
-
Living with Duchenne muscular dystrophy but choosing opportunity
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community
-
MDA Advocacy Team Reports Updates in Newborn Screening Legislation
This year has been an eventful year for newborn screening in neuromuscular disease, with potential
-
Understanding BiPAP Webinar: Why It’s Needed, What Gets in the Way, and, How to Increase Compliance
The PPMD team was recently joined by pulmonologist Dr. Janaki Paskaradevan, psychologist Dr. Allison Clarke,
-
How I advocate for my community as a girl with Duchenne MD
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community
