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Pride and heartbreak as my healthiest son is moving to college
August here in Nebraska is sweltering. Not only do the temperatures reach the high 90s, […]
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Life with Lily: The Right to Access My Education Fully
“Lily, I think you’re old enough now to advocate for yourself in your 504 meeting […]
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I’m waving goodbye to acting, but I’m not about to exit the stage
When I was 13 and fresh from spinal fusion surgery, I sat in a West […]
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Edgewise Therapeutics: Focused on Muscle Disease
Developing a novel therapeutic designed to protect muscle in Becker and Duchenne muscular dystrophy Watch […]
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Your Legacy Can Help Cure Duchenne
Legacy Giving August is Make-a-Will Month — the perfect time to reflect on how you […]
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Early data for experimental DM1 therapy SRP-1003 coming soon
Preliminary data are expected this year for a Phase 1/2 clinical trial testing the investigational […]
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Community Members Reflect on MDA’s Impact
From our earliest days, MDA’s mission has been centered on ensuring that individuals and families […]
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MDA Community Programs Support and Empower
For 75 years, MDA has been dedicated to standing by your side, offering hope, connection, […]
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Progress Now: Research News and Updates Across MDA Diseases Quest Magazine Issue 3, 2025
New approvals New Treatment Approved for gMG In April, the US Food and Drug Administration […]
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Neuromuscular Disease Research: Going Strong
Is hope foolish? For 75 years, MDA has been answering with a resounding, “No.” When […]
