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Certain proteins may be biomarkers of BMD progression, study suggests
Levels of certain proteins implicated in immune response and the body’s process to stop bleeding […]
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Newly Published Consensus Guidelines Aim to Ensure Safe and Equitable Delivery of Gene Therapy in Duchenne
PPMD, in collaboration with the Muscular Dystrophy Association (MDA), is proud to share the release […]
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Going it alone has gotten harder as my FSHD progresses
I’ve been on my own for the past 10 days while my wife, Wendy, and […]
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National Read a Book Day: Spotlight on Community Authors
While every day is a good day to enjoy the simple pleasure of reading, National […]
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ITF Therapeutics shares publication of long-term data showing givinostat can delay loss of functional abilities in Duchenne
Results published in the Annals of Clinical and Translational Neurology show that long-term treatment with givinostat, a […]
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Building More Than Slides: MDA Engage Events Cultivate Connection
Dr. Kaitlin Batley, Engage Steering Committee member, MDA Care Center Director, Assistant Professor at UT […]
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The importance of community for those of us living with MD
Living with muscular dystrophy for 40 years has taught me many things. I’ve written here […]
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Fashion with Impact: CureDuchenne’s Ladies Luncheon Newport Beach Returns October 14 with Elegant Max Mara Showcase
Luncheon and Fashion Presentation, Produced and Sponsored by South Coast Plaza, Funds Transformative Duchenne Muscular […]
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Scientists map genetic mutations linked to collagen 6-related MD
Researchers have developed a detailed molecular model for the structure of type VI collagen and […]
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CureDuchenne’s “Champions in Dallas” Returns with Unforgettable Night of Food, Wine, and Hope for a Cure
Top Dallas Chefs and Napa Valley Wines Unite to Support Groundbreaking Research for Duchenne Muscular […]
