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An open letter to doctors who aren’t familiar with limb-girdle MD
Dear doctors, I am writing to share my knowledge about living with a rare, chronic
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Ready for Respiratory Season: Keeping You and Your Family Healthy
With the start of school and the approach of winter, respiratory viruses are expected to
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WEBINAR: Avidity EXPLORE44-OLE Functional Data Update
Avidity reports multiple functional improvements with Del-zota for individuals with Duchenne amenable to skipping exon
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CureDuchenne Announces Fuerza 2025: A Landmark Conference in Mexico City on October 25 Focused on Duchenne and Becker Muscular Dystrophy
Full-Day Conference Will Bring Education, Support, and Connection to Families and Healthcare Providers Serving the
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14th Annual CureDuchenne Golf Shootout Hosted by Dani and Troy Terry Raises Over $550,000
Event Proceeds Will Advance Research and Support the CureDuchenne Clinic within the Neuromuscular Program at
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MDA Ambassador Guest Blog: Better All the Time: Fighting Against Bitterness
Chase Rankin was diagnosed with Friedreich’s ataxia in the 7th grade. He is now a
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With DMD, the transition to adulthood brings many unknowns
One thing I love about living in the Midwest is enjoying all four seasons. The
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DM1 gene therapy trial seeks patients ages 10-50
A Phase 1/2 clinical trial testing SAR446268, an experimental gene therapy for myotonic dystrophy type
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WEBINAR: Edgewise
A Fireside Chat with Mike Kelly and Edgewise Therapeutics: A Duchenne Program Update Wednesday, September
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Hormone combination therapy delivers gains for men with FSHD
A combined regimen of testosterone and growth hormone led to significant improvements in muscle mass,
