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Catch Up on PPMD Together: Charlotte
This past weekend, PPMD held its last in person PPMD Together event of 2025 in […]
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Making adaptations while living with Duchenne muscular dystrophy
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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An infected bug bite landed me in the ER, but I was in great hands
My daughter Jill and my wife, Wendy, are my primary caregivers. In August, Jill and […]
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Quest Podcast: Precision Medicine: Mapping the Genetic Code for New Treatments
In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, […]
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MDA Summer Camp Alumni Put the Power in Powerhockey
Philadelphia Flyers PowerPlay Orange Team takes the court in Game 3 of the tournament. Photo […]
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Insights by Ira: From Telethons to Treatments – Decades of Impact
When I think of Labor Day Weekend every September, it truly invokes so many emotions […]
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Exon-skipping DMD therapy gets FDA orphan drug status
The U.S. Food and Drug Administration (FDA) has granted orphan drug status to NS-051/NCNP-04, an […]
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Being part of a disabled community means learning to trust
In recognition of Duchenne Muscular Dystrophy Awareness Month in September, the Duchenne Muscular Dystrophy Community […]
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An open letter to doctors who aren’t familiar with limb-girdle MD
Dear doctors, I am writing to share my knowledge about living with a rare, chronic […]
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Ready for Respiratory Season: Keeping You and Your Family Healthy
With the start of school and the approach of winter, respiratory viruses are expected to […]
