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Every Collegiate™ Apparel Brings Inclusion to Campus
Mo Gerhardt at a Michigan State University football game. Mo Gerhardt is changing the game when it comes to accessible and inclusive fashion. The 48-year-old retired Michigan State University (MSU) Academic Advisor and Women’s Basketball Academic Coordinator, who lives with LGMD 2D, has found passion and purpose in his second chapter through the creation of…
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Rare pregnancy infections may triple the risk of autism
A major Swedish study of 3.7 million people has found that rare TORCH infections passed from a pregnant woman to the fetus are linked to much higher risks of autism and intellectual disability later in life. Children with a congenital TORCH infection were about three times more likely to be diagnosed with autism, more than…
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Protein-rich diet tied to better quality of life for men with BMD
A protein-rich diet was associated with less body fat and better quality of life among adults with Becker muscular dystrophy (BMD), a small study in the U.K. found. While the study didn’t show that eating more protein would reduce body fat or improve quality of life, the findings “support further investigation into the role of…
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Aging muscles may be losing strength for a reason scientists missed
A newly identified breakdown in communication between nerves and muscles could help explain why people lose strength as they age. Researchers were able to improve muscle strength in an animal model by targeting a key protein, raising hopes that some age-related weakness could eventually be treated.
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Living fast and embracing everyday life with an ultra-rare type of MD
In recognition of Muscular Dystrophy Awareness Month in September, the Muscular Dystrophy Awareness Month campaign features a series of stories highlighting the real-life experiences of people affected by muscular dystrophy, written in their own words. Follow us on Facebook, Instagram, or X for more stories like this, using the hashtag #MDAwarenessMonth, or read the full…
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Reading is one way I adapt to change with Duchenne MD
On Sept. 6, I attended the launch of ReadSG at Singapore’s National Library to support my girlfriend, Amanda Yip. ReadSG is a five-year national movement by the National Library Board, Singapore’s public agency for libraries and archives, that encourages people to make reading an everyday habit, starting with just 15 minutes a day. It was…
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MDA Ambassador Guest Blog: A Different Kind of Adventure – The Ups & Downs of Living with LGMD
William Quickel lives in East Tennessee. He was diagnosed with a rare form of limb-girdle muscular dystrophy (LGMD) in 2021, when he was 27 years old. He has shared his story through his YouTube Channel and currently works for a local nonprofit that serves and supports teens and adults with autism. There was a time…
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Immune pathway may contribute to muscle damage in myotonic dystrophy
An immune signaling pathway involving type I interferon (IFN-I) may be a potential therapeutic target for muscle damage in people with myotonic dystrophy type 1 (DM1), a new study suggests. An examination of immature muscle cells from children with DM1 found that increased IFN-I signaling was associated with stress in the cell’s protein-processing machinery and…
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Faites entendre votre voix.
Contribuez à façonner l’avenir de l’accès aux traitements contre la dystrophie de Duchenne au Canada. Vaincre Duchenne Canada, La Force DMD et Dystrophie musculaire Canada travaillent ensemble à la réalisation d’un sondage national conjoint visant à mieux comprendre les répercussions de la dystrophie musculaire de Duchenne sur les personnes qui en sont atteintes et leur famille.…
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Catch up on PPMD Together: San Francisco
This past weekend, PPMD headed west for PPMD Together: San Francisco, CA, bringing together families, clinicians, industry partners, and local organizations for two days of connection, learning, and collaboration. Following an evening reception on Friday, Saturday featured conversations focused on topics that matter to families living with Duchenne and Becker, including daily life, school, advocacy,…
