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Moderate pain reported by a third of muscular dystrophy patients
Nearly one-third of people with muscular dystrophy (MD) experience moderate pain, which varies by the […]
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Connecting with Experts via PPMD For You
Need direct support for yourself or your child living with dystrophinopathy? PPMD’s PPMD For You program […]
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Quest Podcast: Unpacking Disability Pride- Voices from the MDA Community
In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and […]
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A program for youth leaders leaves me optimistic for the future
A couple weeks ago, I had the privilege of participating in a unique event designed […]
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Households caring for DMD patients face high costs: US survey
Households incur substantial costs to accommodate people with Duchenne muscular dystrophy (DMD), according to a […]
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In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this […]
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Understanding MDA Advocacy’s Education Policy Efforts
At MDA, we believe that students in the neuromuscular community deserve to pursue their own […]
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What risk vs. reward looks like in the patient world
The reward is that the chocolate cake tastes delicious and leaves you with a nice […]
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Medicaid, Reconciliation Passage, and What Comes Next for Our Community
This past week, the federal reconciliation package officially passed. The legislation covers a broad range […]
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Giving thanks that my 3 sons with DMD have one another
Summer vacation in the Midwest typically begins in mid-May, and kids return to school by […]
