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Caregiving sometimes feels like walking a tightrope
My heart is walking a tightrope. I’m a 45-year-old wife to Jason and mother to […]
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Life with Lily: Finding My Voice
Hello everyone! I’m so excited to launch my quarterly blog series as your 2025 National […]
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MDA’s Origin Story: Grassroots Legacy
As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? […]
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2024 MDA Advocacy Collaboration Grantees are Working Towards Change
Advocacy for the neuromuscular disease community is just one of the key ways MDA works […]
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Hoyer Lifts and Beyond: Choosing the Right Lift Device
For those living with limited mobility from a neuromuscular disease or other disability, assisted transfers […]
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First Semester in a New York Minute
Jonathan Lengel is an actor, singer, and performer best known for his role as Archie […]
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Patients with more siblings report being better prepared for adulthood
Adolescents and young adults with Duchenne (DMD) or Becker muscular dystrophy (BMD) who have more […]
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Solid Biosciences Shares Initial Data from INSPIRE DUCHENNE Study of Gene Therapy Candidate SGT-003
Solid Biosciences Inc. has announced positive initial data from the company’s Phase 1/2 INSPIRE DUCHENNE […]
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MD trial update: 5 OPMD patients safely treated with gene therapy
Five people with oculopharyngeal muscular dystrophy (OPMD) — a type of muscular dystrophy marked by […]
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A week in the life of an overwhelmed caregiver
I’ll be straightforward about caregiving: It’s exhausting. I’m the mother of seven children: Lexi, 23, […]
