Kids News

This past weekend, PPMD held its last in person PPMD Together event of 2025 in Charlotte, North Carolina. Over two days, families, individuals with Duchenne and Becker muscular dystrophy, clinicians, researchers, and industry partners gathered… The post Catch Up on PPMD Together: Charlotte appeared first on Parent Project Muscular Dystrophy.

With the start of school and the approach of winter, respiratory viruses are expected to rise. This year, and every year, it’s important to protect yourself, your children, and your family from respiratory infections. This… The post Ready for Respiratory Season: Keeping You and Your Family Healthy appeared first on Parent Project Muscular Dystrophy.

On Friday, September 5th, 2025 I had the honor of speaking at the United Nations to raise awareness and turn hope into action for World Duchenne Awareness Day.  The Permanent Representative of the State of… The post Duchenne on the World Stage: World Duchenne Awareness Day at the United Nations appeared first on Parent Project Muscular Dystrophy.

Today, Avidity Biosciences announced new data from its EXPLORE44® and EXPLORE44-OLE™ Phase 1/2 studies of del-zota in people living with Duchenne muscular dystrophy amenable to exon 44 skipping. Del-zota is designed to deliver phosphorodiamidate morpholino… The post Avidity Biosciences Announces Positive New Data from EXPLORE44® and EXPLORE44-OLE™ Phase 1/2 Studies appeared first on Parent Project Muscular Dystrophy.

PPMD will join forces with fellow Duchenne-specific organizations from around the world to celebrate World Duchenne Awareness Day on September 7. This global initiative, spearheaded by the World Duchenne Organization, aims to raise awareness about Duchenne and… The post PPMD Kicks Off World Duchenne Awareness Day with Bad Shirt Friday, Special United Nations Documentary Premiere appeared first on Parent Project Muscular Dystrophy.